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Mouth Saga - cellophane — LiveJournal
the story of an invisible girl
Mouth Saga
The story of the mouth owie:

Mar 2006
Oct 2006

Apr 2007
(skip fall)

Apr 2008
Oct 2008

(skip spring)
Nov 2009

Feb/Mar 2010
(skip fall)

Mar 2011
May 2011

Ever since my first nasty incident, I'd had these "incidents" every 6 months or so - more or less. (although the last two came within 2 months of one another for some mysterious reason).

The whole thing is mysterious and frustrating. Having this happen is really no worse than a common cold - however the frustration comes from having no idea what it is, what has caused it, nor what will make it go away. Mouthwash generally helps. If it last awhile, I take antibiotics. However I don't know if it would have gone away in its same amount of time if I'd skipped either the mouthwash or the antibiotics.

After my last occurrence, I saw my GP and asked for help. She shrugged her shoulders, and she sent me to an ENT. Last week, after much rescheduling,i I saw somebody. They looked me over thoroughly, shrugged, described a couple of theories, and prescribed an MRI. My MRI was saturday, and completely uneventful. The only downside was having to remove my hair feathers, which I'd just had reattached.

This morning was my post-MRI followup. It was also uneventful, and a bit discouraging. The good news is: the MRI found nothing to be concerned about, my head looks perfectly normal. Now I do acknowledge that this is good news, because the majority of things found by an MRI turn out to be Bad Things. However the bad news is, they then just shrugged their shoulders and passed me off to some other doctor.

When I visited last week, the young resident who saw me vowed that we'd keep running tests and exploring options until we figured out what was causing these strange incidents! This morning, two other doctors lined up against the table and shrugged their shoulders. They assigned me some blood work, because they thought it might be an auto-immune sorta thing.

They then suggested i followup with my primary care physician. That's when I realized it: they were dumping me. Far from the "exploring every option" vow the other guy had made to me, these guys were taking the "it's not my area" tact instead. The stuff they could fix didn't seem to need fixing, so they sent me to have some blood drawn and then on my merry way.

I was bummed! I mean, I know I should be glad that the MRI did not reveal anything nasty lurking in my ENT area. However I was hoping it would find something mild, like a nice salivary stone to remove. Or at least a pointer to a next step. Instead it led to a "not my job" sorta reaction, and they're sending me back to my PCP who had sent me there in the first place.

Grrrr....we'll see what the blood results say, and then see what she has to say in two weeks or so. But right now I feel like I wasted a whole lot of time and energy for nothing! *sigh*


read 8 comments | talk to me!
c0nsumer From: c0nsumer Date: October 5th, 2011 04:05 am (UTC) (Link)
What are the symptoms? Is it thrush? If so, are you using a steroidal inhaler?
renniekins From: renniekins Date: October 6th, 2011 03:11 am (UTC) (Link)
No to both questions - it is possibly an infected parotid gland, or if not it behaves similarly. Could be from a salivary stone, but multiple doctor visits have never found a stone or other explanation.
nishar From: nishar Date: October 5th, 2011 11:29 am (UTC) (Link)
I hope it's nothing. It's too irregular to be an STD. And you are too careful for that kind of thing any way.
geekjul From: geekjul Date: October 5th, 2011 05:37 pm (UTC) (Link)
You know, based on timing alone, it makes me wonder if it could somehow be allergy-related? Just a thought.
renniekins From: renniekins Date: October 6th, 2011 03:14 am (UTC) (Link)
It's possible! It also tends to happen a week or two after I've gotten over a cold... but not always... (of course not always, that would be too easy :)
fachless From: fachless Date: October 5th, 2011 06:23 pm (UTC) (Link)
Remember, there's value in being able to rule things out as well. Hang in there!
renniekins From: renniekins Date: October 6th, 2011 03:17 am (UTC) (Link)
Good point!

And honestly if I must have a regular unexplained flareup of something, this is not too bad. It's tolerable, and at least now I know it's not anything Bad. Just wish I knew for sure what it was!
thenisaid From: thenisaid Date: October 6th, 2011 03:16 am (UTC) (Link)
Food journal? But it's so rare. Hmm!

Has any of these doctors included a dermatologist, preferably at a teaching hospital? Derm residents are extremely persistent and ambitious. I'm so sorry you've been dumped like that.
read 8 comments | talk to me!